Acorda Therapeutics, Inc. (Nasdaq:ACOR) today announced it has launched a new community resource for people with Parkinson’s, “The Many Faces of OFFSM1” Facebook page. The site, which is going live in conjunction with the upcoming 4th World Parkinson Congress (WPC), will provide a forum for people with Parkinson’s to learn more about OFF periods and connect with each other to share experiences.
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OFF periods are characterized by the re-emergence of Parkinson’s symptoms, including motor symptoms such as the impaired ability to move, muscle stiffness, and tremor.
“People with Parkinson’s regularly tell us that they need more information about OFF periods and would also value an online forum dedicated to the impact of OFF, as they don’t always have a dialogue with their healthcare team about these experiences,” said David Squillacote, M.D., Vice President, Medical Affairs for Acorda. “We established this new resource to provide high-quality content from the community and healthcare professionals, and to enable discussions about OFF among people with Parkinson’s.”
“The Many Faces of OFF” Facebook page includes videos of people with Parkinson’s and care partners talking about their personal challenges of OFF. The page also provides explanations of key concepts and tips for living with OFF periods, and is expected to host Parkinson’s disease events. Importantly, the page encourages the Parkinson’s community to participate and share their stories.
Acorda is launching the Facebook page as part of a broader educational initiative around OFF periods. At this year’s WPC, being held September 20-23 in Portland, OR, Acorda is hosting a symposium entitled “The Many Faces of OFF: Realities and Impact.” This symposium will feature people with Parkinson’s discussing their experience with OFF periods, while movement disorder specialists Raj Pahwa, M.D. and Larry Elmer, M.D, Ph.D. will discuss the impact of OFF, and challenges to effective communication of this impact between people with Parkinson’s and their physicians.
“The Many Faces of OFF” symposium is being held on September 22 at 7:00 pm and is open to all WPC attendees. Registration information can be found here. Acorda will also host an interactive experience about OFF periods at its “The Many Faces of OFF” booth (WPC Booth #800).
Acorda is also presenting several research posters at WPC.
Approximately one million Americans, 1.2 million Europeans, and between seven and ten million people worldwide suffer from Parkinson's disease.
1 The Many Faces of OFF is a service mark of Acorda Therapeutics, Inc.
About Parkinson’s Disease and OFF Periods
Parkinson's disease is a progressive neurodegenerative disorder resulting from the gradual loss of certain neurons responsible for producing dopamine, which causes impairment of motor function including impaired ability to move, muscle stiffness and tremors. Non-motor symptoms are also common; they include anxiety, depression, sleep difficulties and gastrointestinal (GI) challenges among others.
As Parkinson’s disease progresses, people with Parkinson’s experience OFF periods, during which symptoms re-emerge. OFF periods increase in frequency and severity during the course of the disease.
In the United States, approximately 350,000 people with Parkinson’s experience OFF periods. OFF periods are inadequately addressed by available therapies and are considered one of the greatest unmet medical needs facing people with Parkinson's disease.
About Acorda Therapeutics
Founded in 1995, Acorda Therapeutics is a biotechnology company focused on developing therapies that restore function and improve the lives of people with neurological disorders.
For more information, please visit the Company’s website at: www.acorda.com.
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Last updated on: 15/09/2016
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