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Press Release

Cystic Fibrosis Foundation to Host More Than 4,600 Researchers and Clinicians in Orlando Oct. 27–29 to Advance Search for a Cure

Cystic Fibrosis Foundation
Posted on: 25 Oct 16

Cystic Fibrosis Foundation:

WHAT: The 30th Annual North American Cystic Fibrosis Conference (NACFC), the largest scientific educational forum of its kind. During more than 200 sessions and roundtable discussions, medical experts – scientists, clinicians, pharmacists, social workers and nutritionists – will discuss breakthroughs in CF research and care, harnessing patient data, promising routes to a cure and more. Highlights include:

  • Gene editing: How repairing the defective gene may be a route to finding a cure for all people with CF, regardless of mutation.
  • The next game-changing drugs: With two breakthrough therapies on the market for CF, what can the next generation of drugs bring?
  • Harnessing the power of patients and families and 30 years of data: A new way for people with CF to help shape observational research using data from the CF Foundation Patient Registry.
  • Clinical trial challenges: With record numbers of clinical studies underway, the international CF community is working to expand the pool of participants and trial networks.
  • An evolving health care landscape: How does the CF community – clinicians, insurers and patients – transform payment and delivery of high-quality, high-value CF care?

WHEN: Thursday, Oct. 27 to Saturday, Oct. 29, 2016

WHERE: Orange County Convention Center, West Building
9990 International Dr., Orlando, Fla. 32819

WHY: Cystic fibrosis is a rare, genetic disease that causes chronic lung infections, lung damage and premature death. CF affects more than 30,000 people in the U.S. and 70,000 worldwide.

NACFC is sponsored by the Cystic Fibrosis Foundation, which has made tremendous strides over the past 60 years in helping people with CF live longer and better lives. Because of Foundation-supported research and care, the life expectancy of a person born with CF has doubled in the last 30 years. Additionally, gains in drug discovery and development have generated widespread engagement across the biotech and pharmaceutical industries in the area of cystic fibrosis research.

PRESS CONTACT: For further information, contact Laurie Fink, national director of media relations at

About the Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis. The Foundation funds more cystic fibrosis research than any other organization, and nearly every CF drug available today was made possible in part through Foundation support. Based in Bethesda, Md., the Foundation also supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The Cystic Fibrosis Foundation is a donor-supported nonprofit organization. For more information, go to

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Last updated on: 25/10/2016

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