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Press Release

Sobi launches enhanced corporate sustainability initiative

Posted on: 02 Mar 18

Swedish Orphan Biovitrum AB (publ) (Sobi™) announces today, on Rare Disease Day, the launch of an enhanced corporate sustainability programme with a strong connection to the company’s strategy of providing sustainable access to treatments for rare diseases.

As part of the new sustainability strategy, Sobi has identified several focus areas that are important for both the stakeholder communities and Sobi’s business. Sobi’s stakeholders include the communities of patients and caregivers affected by rare diseases, the local communities around the globe in which Sobi operates, the community of companies that form the biopharmaceutical industry, shareholders and the communities of individual employees who comprise Sobi. The topics we understand to be of most importance to these communities and to the business are:

  • Responsibility: this includes complying with all applicable laws and regulations; a key priority here is responsible tax management.
  • Compliance and ethics: this includes acting ethically and with integrity; a key priority is patient safety and ethical practices and collaborations, including transparency of transactions with healthcare organisations and transparency of clinical trial results.
  • Value: this includes mission-driven top concerns for stakeholder communities – sustainable access to treatments for rare diseases, and strategic research and development of new medicines.

“Sobi has a vision of becoming a global leader in providing access to innovative treatments that make a significant difference for individuals with rare diseases,” said Guido Oelkers, Sobi CEO. “Sustainability is a vital part of our vision and overall corporate strategy. A sustainable business entails a commitment to responsibility for patients and employees, reduced environmental impact from operations and treatment, as well as long-term sustainable profitability so that we can continue to reinvest in developing new therapies for rare diseases and serve our communities for many years to come.”

Examples of Sobi’s recent progress and commitments to sustainability include:

  • Secure and sustainable supply: Sobi provides access to 36 products across 72 countries. These products are medicines that have an important impact on patients, and in many cases are essential for life. Ensuring secure, reliable, sustainable supply of these medicines is therefore one of Sobi’s highest priorities. Sobi’s understanding of the complex healthcare environments across all the regions we work in has enabled supply and access to treatments whose introduction to the health system would otherwise have been delayed or prevented.


  • Sustainable access to medicines: Sobi is committed to playing an active role in the dialogue with stakeholders, governments and healthcare systems across the world, to ensure that patients get timely and sustainable access to the medicines they need, irrespective of where they live and the level of development of their local healthcare system.


Sobi is also working with developing countries to lay the foundation for sustainable access to treatments for rare diseases, often in partnership with governments and organisations to secure long-term change. Sobi and its collaboration partner Bioverativ have pledged to donate up to 1 billion international units of clotting factor between 2015 and 2025 for people with haemophilia in developing countries to enable predictable supply of clotting factor treatment. The World Federation of Hemophilia is leading this treatment initiative, which up to the end of 2017 had provided treatment for over 15 000 people. Sobi is also taking a leading role in the PARTNERS programme, recently established by the European Haemophilia Consortium, to bridge the gap between the recognised minimum haemophilia treatment recommendations and the volume of therapy available in several European countries with developed healthcare systems but highly limited budgets. Through such collaborative partnerships with national member organisations, government health systems and healthcare providers, Sobi is working actively to transform donation programmes into sustainable access. For people living with hereditary tyrosinaemia type 1, efforts are ongoing to secure government approval and long-term access to treatment in Eastern Europe, Asia and the Middle East.

  • Strategic research and development: Sobi has set out to create a self-sufficient R&D pipeline within the coming 5-10 years. Sobi reinvests earnings into building further understanding of and in the research and development of treatments for rare disease in the core areas of Haemophilia, Inflammation and Genetics & Metabolism.

Sobi will present its Annual and Sustainability reports on 15 April 2018.

Sobi in the United Kingdom (UK) and Republic of Ireland (RoI): our commitments to corporate social responsibility

In the UK and RoI, Sobi supports leading charities such as the Cambridge Rare Disease Network, CLIMB (Children Living with Inherited Metabolic Disorders) now known as Metabolic Society UK, and Findacure and over the years, many UK meetings on Rare Disease Days. Sobi also supports a number of Haemophilia voluntary groups in the UK and RoI. Neil Dugdale, General Manager of Sobi UK and RoI acts as a trustee for a new rare disease charity, Rare Disease Nurse Network (RDNN) which aims to provide specialist nurse support for those affected by rare diseases. Sobi is happy to sponsor Medics4RareDiseases which is launching today on Rare Disease Day. This educational group reaches out to medical students and doctors in training with a view to improving the rare disease patient journey and reducing the diagnostic odyssey. Sobi provides many support materials free of charge for patients and their families whose illnesses fall within the company’s therapeutic area of interest. Sobi was invited to give evidence to the All Party Parliamentary Group on Rare Disease (APPG) to help ensure rare diseases receive the government support and funding that they require.

“Sobi in the UK and RoI has always played an active role with many communities associated with rare diseases,” said Neil Dugdale. “As Sobi aims to become a leader in rare disease, we will continue to champion the rare disease patient, as well as fight for patient access to the most innovative drugs within the UK and RoI.”

The RoI has recently become the first country in Europe to give every person with haemophilia A and B access to the newest generation of haemophilia treatments, extended half-life therapies, a demonstration of Sobi’s desire to provide patient access to these innovative products.


About Sobi™

Sobi™ is an international speciality healthcare company dedicated to rare diseases. Our vision is to be recognised as a global leader in providing access to innovative treatments that make a significant difference for individuals with rare diseases.

The product portfolio is primarily focused on treatments in Haemophilia and Specialty Care. Partnering in the development and commercialisation of products in specialty care is a key element of our strategy. Sobi has pioneered in biotechnology with world-class capabilities in protein biochemistry and biologics manufacturing. In 2017, Sobi had total revenues of SEK 6.5 billion and approximately 850 employees. The share (STO:SOBI) is listed on Nasdaq Stockholm. More information is available at

For more information please contact

Neil Dugdale, General Manager, UK and Ireland

T: +44 (0) 1223 891854

Lorraine Walters, Say Communications

T: +44 (0)20 8971 6400




Editor's Details

Stuart Etherington

Last updated on: 02/03/2018

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