First Specialist Neurofibromatosis (NF) Nurse for Wales
Nerve Tumours UK and Cardiff and Vale University Health Board have appointed the first ever Specialist
Neurofibromatosis (NF) Nurse for Wales, to be based at the University Hospital for Wales (UHW) in Cardiff.
Neurofibromatosis (NF) is one of the most common neuro-genetic conditions causing tumours to grow on nerve
endings and with many associated medical, physical and psychological conditions e.g. Scoliosis and 60% of those
diagnosed will have learning disabilities. NF affects more than 26,500 in the UK alone, which is more than those
diagnosed with Hereditary Muscular Dystrophy, Huntingdon’s Disease and Cystic Fibrosis combined, yet few, including
medics have heard of the condition.